Part I: Introductory chapters

1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange
Wouter F.J. Feitz

2. The European Association of Urology (EAU) and ERN eUROGEN
Christopher R. Chapple

Part II: Overview chapters

3. ERN eUROGEN: Impact and innovations for rare and complex urology
Wouter F.J. Feitz, Loes Oomen, Darren Shilhan, Michelle Battye, and Jen Tidman

4. The patient view on the ERN programme: Share, care, cure, and pathways
Dalia Aminoff, Rita Serena Bartezzati, Nicole Schwarzer, Claire Harkin, Kate Tyler, Anna De Santis, John Osborne, Kenneth Manzie, and Robert Cornes

5. Cross-ERN actions and collaborations by ERN eUROGEN
Michelle Battye, Matthew Bolz-Johnson, and Jen Tidman

6. Development of the ERN eUROGEN registry
Loes F.M. van der Zanden, Isabel C. Hageman, Lotte Boormans, Loes Oomen, and Wim P.J. Witjes

7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs)
Jen Tidman, Wouter F.J. Feitz, Ramnath Subramaniam, Dalia Aminoff, Juan Antonio Blasco-Amaro, Beatriz Carmona-Hidalgo, Lourdes González-Bermúdez, Carmen Martín-Gómez, Elena Stallings, María Jose Vicente-Edo, and Patricia Gavín Benavent

Part III: Clinical chapters

Section A
Workstream 1: Rare congenital uro-recto-genital anomalies

8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development
Verena Ellerkamp, Katja P. Wolffenbuttel, and Raimund Stein

9. Expertise Area 1.2: Bladder exstrophy/epispadias
Gundela Holmdahl, Marc-David Leclair, Wolfgang H. Rösch, and Alaa El-Ghoneimi

10. Expertise Area 1.3: Rare urological stones and kidney diseases
Matthieu Peycelon, Annabel Paye-Jaouen, Delphine Demede, Valeska Bidault, Marie Andersson, and Anne-Françoise Spinoit

11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina
bifida)
Giovanni Mosiello, Rien Nijman, Christian Radmayr, Michaela Dellenmark-Bloom, Sylvia Roozen, Jean Marie Jouannic, Raimund Stein, and Kate Abrahamsson

12. Expertise Area 1.5: Posterior urethral valves
Yazan F. Rawashdeh, Magdalena Fossum, Raimund Stein, and Rafal Chrzan

13. Expertise Area 1.6: Proximal hypospadias
Magdalena Fossum, Lisa Örtqvist, Yazan F. Rawashdeh, and Alessandro Morlacco

14. Expertise Area 1.7: Ano-uro-rectal malformations
Herjan J.J. van der Steeg, Paola Midrio, Eberhard Schmiedeke, and Ivo de Blaauw

Section B
Workstream 2: Functional urogenital conditions requiring highly specialised surgery

15. Expertise Area 2.1: Complicated and complex pelvic floor disorders
John Heesakkers, Michel I.A. Wyndaele, Laetitia M.O. de Kort, Emilio Sacco, Riccardo Bientinesi, Dejan Filipas, Insa Fruehling, Tim Ludwig, and Margit Fisch

16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra
José Medina-Polo, Malte W. Vetterlein, and Jakob Klemm

17. Expertise Area 2.3: Urethral reconstruction in rare diseases and conditions
Malte W. Vetterlein, Michel I.A. Wyndaele, Felix Campos-Juanatey, Jakob Klemm, Laetitia M.O. de Kort, Margit Fisch, Petra de Graaf, Tim Brits, and Gunter De Win

18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions
Maria Virginia Amesty, Susana Rivas, Fabrizio Dal Moro, and Mariangela Mancini

19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC)
Mariangela Mancini, Dick Janssen, Alessandro Morlacco, Enrico Ammirati, and Alessandro Giammo

20. Expertise Area 2.6: Adult urogenital reconstructive surgery
Laetitia M.O. de Kort, Tim Brits, Sara Brucker, Pepijn Polm, Katharina Rall, Raimund Stein, Sahra Steinmacher, Kate Tyler, and Nina Younsi

21. Expertise Area 2.7: Surgery for transgender patients
Silke Riechardt, Timo Nieder, Katharina Grupp, and Benjamin Meister

Section C
Workstream 3: Rare Urogenital Tumours

22. Expertise Area 3.1: Penile cancer
Manon T.A. Vreeburg, Peter Kirrander, Marco Falcone, Maarten Albersen, and Oscar R. Brouwer

23. Expertise Area 3.2: Testicular cancer
Arnout Alberts, Tomas Buchler, Yue Che, Ana Fröbe, Marija Miletic, and Tahlita Zuiverloon

24. Expertise Area 3.3: Adrenal cancer
Johan Langenhuijsen, Marija Miletic, Mirsala Solak, Mario Dominguez Esteban, Mariangela Mancini, Daphne Hompes, Tomislav Kulis, Jörg Fuchs, Bastian Amend, and Ana Fröbe

25. Expertise Area 3.4: Abdominopelvic sarcoma
Mariangela Mancini

26. Expertise Area 3.5: Rare renal tumour surgery
Matthieu Peycelon, Pascale Philippe-Chomette, Anne-Françoise Spinoit, and Marie Andersson