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This book details the benefits of palliative care to improve the lives of patients with serious lung disease and their caregivers. Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of a serious illness, and is often described as “an extra layer of support” for patients and their caregivers, as patients with malignant and nonmalignant lung disease experience great symptom burden and have advanced care planning needs.
This book has three main objectives:
Written by leading experts in palliative care and respiratory medicine, the chapters seek to answer those objectives by first defining and describing palliative care, advanced lung disease, and inadequate palliative care in this patient population. Patient reported outcomes, quality of life, and interventions to help deal with the psychological toll of serious illness are then detailed, as well as pharmacological and non-pharmacological interventions for symptom management. Detailed information is additionally provided on current research studies and management for several lung diseases, including COPD, ILD, Lung Cancer, Pulmonary Arterial Hypertension, Neuromuscular disease, and pediatric lung disease. The more administrative aspects of palliative care programs are then covered with an example of a specialty palliative care program for advanced lung disease and advice on how to address policy that promotes palliative care. Finally, palliative care's role during a pandemic is thoughtfully considered.
This book is an ideal guide for clinicians, nurses, hospital administrators, teachers, students to help them understand and fill unmet care needs that many patients with serious lung disease experience.
Pages i-xvi
Palliative Care in Lung Disease
Betty Ferrell, Annie Rhea Harrington
Pages 1-10
An Introduction to Advanced Lung Disease
Renea Jablonski, Mary Strek
Pages 11-25
Inadequate Palliative Care in Lung Disease
Matthias Villalobos, Michael Kreuter
Pages 27-41
Patient-Centredness and Patient-Reported Measures (PRMs) in Palliation of Lung Disease
Anne Marie Russell, Lesley Ann Saketkoo
Pages 43-75
Quality of Life in Chronic Lung Disease
Matthew Koslow, Jeffrey Swigris
Pages 77-88
Irene J. Higginson, Charles C. Reilly, Matthew Maddocks
Pages 89-113
Preparatory and Anticipatory Grief, Anxiety and Depression in Life-Limiting Lung Disease
Debra G. Sandford
Pages 115-134
Symptom Management in Advanced Lung Disease
Rebecca Anna Gersten, Sonye K. Danoff
Pages 135-145
Communication in Palliative Care
Taylor Lincoln, Jared Chiarchiaro
Pages 147-163
Anand S. Iyer, Dina Khateeb
Pages 165-187
Palliative Care in Interstitial Lung Disease
Marlies S. Wijsenbeek, Catharina C. Moor
Pages 189-207
The Role of Palliative Care in Lung Cancer
Donald R. Sullivan
Pages 209-230
Palliative Care in Patients with Neuromuscular Diseases
Marianne de Visser
Pages 231-253
Palliative Care in Pulmonary Arterial Hypertension
David Christiansen, Jason Weatherald, Evan Orlikow
Pages 255-279
Palliative Care for Children with Lung Diseases
Elisabeth Potts Dellon, Mary G. Prieur
Pages 281-302
Specialty Palliative Care Program ILD
Meena Kalluri
Pages 303-331
Lynn F. Reinke, Alice M. Boylan
Pages 333-343
Palliative Care During a Pandemic
Shelli Feder, Dena Schulman-Green, Kathleen M. Akgün
Pages 345-372
Pages 373-377
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