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Libreria medica internazionale
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Outcome Measures and Metrics in Systemic Lupus Erythematosus
Touma
Editore
Springer
Anno
2021
Pagine
418
ISBN
9783030733025
100,00 €

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Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. 

This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.

  • Introduction: Metrics and Domains Measured in SLE

    Pages 1-28

    McGhie, Taneisha K. (et al.)

  • Clinical Aspects of Systemic Lupus Erythematosus

    Pages 29-50

    Kamen, Diane L. (et al.)

  • Diagnosis and Classification of Systemic Lupus Erythematosus

    Pages 51-66

    Johnson, Sindhu R. (et al.)

  • Challenges and Advances in SLE Autoantibody Detection and Interpretation

    Pages 67-91

    Choi, May Y. (et al.)

  • Childhood-Onset Systemic Lupus Erythematosus (cSLE): Is It Really Different Than Adult-Onset SLE?

    Pages 93-109

    Tam, Herman H. Y. (et al.)

  • Metrics in Disease Activity Measures in Systemic Lupus Erythematosus

    Pages 111-146

    Tselios, Konstantinos (et al.)

  • Metrics of Damage in SLE

    Pages 147-157

    Tofighi, Taraneh (et al.)

  • Metrics and Outcome Measures of Disease Activity and Damage in Childhood-Onset Systemic Lupus Erythematosus

    Pages 159-180

    Avar-Aydin, Pinar Ozge (et al.)

  • Pregnancies in Lupus: Monitoring and Metrics

    Pages 181-195

    Vinet, Evelyne (et al.)

  • Digital Data in Lupus: Metrics and Future Directions

    Pages 197-212

    Simard, Julia F. (et al.)

  • Patient-Reported Outcomes in SLE

    Pages 213-227

    McMorrow, Lily (et al.)

  • Assessment of Health-Related Quality of Life in Systemic Lupus Erythematosus

    Pages 229-249

    Teh, Lee-Suan (et al.)

  • Assessment of Cognitive Function in Systemic Lupus Erythematosus

    Pages 251-285

    Yuen, Kimberley (et al.)

  • Assessment of Depression and Anxiety in Lupus

    Pages 287-301

    Kwan, Andrew (et al.)

  • Fatigue and Pain Measurements in Systemic Lupus Erythematosus

    Pages 303-335

    Ajrawat, Prabjit (et al.)

  • Frailty: An Emerging Concept in Lupus

    Pages 337-356

    Hanly, John G. (et al.)

  • Work Disability and Prevention in SLE: A Focus on Assessment and Function

    Pages 357-370

    Nowrouzi-Kia, Behdin (et al.)

  • Metrics and Outcomes of SLE Clinical Trials

    Pages 371-390

    Oon, Shereen (et al.)

  • Metrics and Outcomes of Systemic Lupus Erythematosus in Clinical Practice

    Pages 391-402

    Gupta, Ambika (et al.)

  • Socioeconomic Impact of SLE: Metrics Utilized in the Determination of Direct and Indirect Costs and Future Directions

    Pages 403-410

    Barber, Megan R. W. (et al.)

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