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Libreria medica internazionale
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Children’s Palliative Care: An International Case-Based Manual
Downing
Editore
Springer
Anno
2020
Pagine
290
ISBN
9783030273743
47,00 €

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This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC.  Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN). 
Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.

  • The Need for and Gaps in Provision of Children’s Palliative Care Globally

    Pages 1-12

    Downing, Julia (et al.)

     
  • Universal Health Coverage and Serious Health-related Suffering: A Case for Children and Young People

    Pages 13-23

    Downing, Julia (et al.)

     
  • Children’s Palliative Care Across a Range of Conditions, Settings and Resources

    Pages 25-37

    Doherty, Megan (et al.)

     
  • Holistic Assessment

    Pages 39-49

    Al-Khabbaz, Emma (et al.)

     
  • Communication with Children and Their Families

    Pages 51-63

    Boucher, Suzanne (et al.)

     
  • Assessment, Prevention, and Treatment of Pain in Children with Serious Illness

    Pages 65-94

    Friedrichsdorf, Stefan J. (et al.)

     
  • Respiratory Care

    Pages 95-109

    Muckaden, Mary Ann (et al.)

     
  • Gastrointestinal Symptoms

    Pages 111-123

    Bernadá, Mercedes (et al.)

     
  • Fatigue

    Pages 125-131

    Vadeboncoeur, Christina (et al.)

     
  • Nutritional Support

    Pages 133-144

    Lacerda, Ana Forjaz (et al.)

     
  • Psychological Care and Distress

    Pages 145-156

    Brand, Tracey (et al.)

     
  • Spiritual Care

    Pages 157-165

    Marston, Joan (et al.)

     
  • Social and Cultural Support

    Pages 167-176

    Haan, Maraliza (et al.)

     
  • End-of-Life Care

    Pages 177-188

    Gafer, Nahla (et al.)

     
  • Supporting the Family at the Time of Death

    Pages 189-199

    Santos, Maiara Rodrigues (et al.)

     
  • Anticipatory Grief and Bereavement Support

    Pages 201-210

    Hunt, Jennifer (et al.)

     
  • Perinatal and Neonatal Palliative Care

    Pages 211-221

  • Supporting the Adolescent and Young Adult

    Pages 223-234

    Watts, Lucy (et al.)

     
  • Managing Ethical Issues

    Pages 235-248

    Evans, Amanda (et al.)

     
  • Collaborative Working and Use of National, Regional and International Networks

    Pages 249-259

    Boucher, Suzanne (et al.)

     
  • Empowering the Team Through Education

    Pages 261-272

    Daniels, Alex (et al.)

     
  • Integrating Research into Care

    Pages 273-284

    Aldridge, Jan (et al.)

     
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